Access to EUROTAST genotype data
The primary purpose of the EUROTAST ITN Network is to explore the history and contemporary legacies of the transatlantic slave trade, through implementation and analysis of large-scale genome-wide datasets. Additional objectives include the use of the data generated to answer important methodological and biological questions relevant to genetic ancestry of African-descendant populations. Access to summary data and individual-level genotype data is available by application to the EUROTAST Data Access Committee (accession number EGAC00001000687). Access to data will be granted to qualified investigators for appropriate use. Individual-level genotype data and summary genotype statistics for EUROTAST collections are held within the European Genotype Archive, https://ega-archive.org/.
For further information regarding EGA, please contact firstname.lastname@example.org.
EUROTAST Data Access Committee (EUROTAST DAC):
Jean-Michel Dugoujon, PhD.
University Paul Sabatier III, Toulouse, France.
Cesar A. Fortes-Lima, PhD.
Evolutionary Anthropology Group, Laboratory Ecological Anthropology
and Ethnobiology (MNHN-CNRS UMR-7206), University Paris 7 Diderot.
Museum of Mankind, Paris 75016, France. Email: email@example.com
Responsibilities for Investigators Accessing and Using EUROTAST Genomic Data.
A. Requests for Controlled-Access Data
Access to human data is through a tiered model involving unrestricted- and controlled-data access mechanisms. Requests for controlled-access data are reviewed by the EUROTAST DAC, which decisions are based primarily upon conformance of the proposed research as described in the access request to the data by the qualified investigator(s) or submitting institution(s) through the Institutional Certification. The access period for all controlled-access data is one year; at the end of each approved period, data users can request an additional year of access or close out the project. Although data are de-identified, approved users of controlled-access data are encouraged to consider whether a Certificate of Confidentiality could serve as an additional safeguard to prevent compelled disclosure of any genomic data they may hold.
B. Terms and Conditions for Research Use of Controlled-Access Data
Investigators approved to download controlled-access data from EUROTAST-designated data repositories and their institutions are expected to abide by the Genomic Data User Code of Conduct through their agreement to the Data Use Certification. The Data Use Certification, co-signed by the investigators requesting the data and their Institutional Signing Official, specifies the conditions for the secondary research use of controlled-access data, including:
* Using the data only for the approved research;
* Protecting data confidentiality;
* Following, as appropriate, all applicable national, tribal, and state laws and regulations, as well as relevant institutional policies and procedures for handling genomic data;
* Not attempting to identify individual participants from whom the data were obtained;
* Not selling any of the data obtained from EUROTAST Genomic Data;
* Not sharing any of the data obtained from controlled-access EUROTAST Genomic Data with individuals other than those listed in the data access request;
* Agreeing to the listing of a summary of approved research uses along with the investigator’s name and organizational affiliation;
* Agreeing to report any violation of the policy to the appropriate EUROTAST DAC as soon as it is discovered;
* Reporting research progress using controlled-access datasets through annual access renewal requests or project close-out reports;
* Acknowledging in all oral or written presentations, disclosures, or publications the contributing investigators who conducted the original study, the funding organization (European Commission) that supported the work, and applicable accession number(s) through which the investigator accessed any data.
EUROTAST DAC expects that investigators who are approved to use controlled-access data will follow guidance on security best practices that outlines expected data security protections (e.g., physical security measures and user training) to ensure that the data are kept secure and not released to any person not permitted to access the data.
If investigators violate the terms and conditions for secondary research use, EUROTAST DAC will take appropriate actions.