EUROTAST Data Agreement Policy

Access to EUROTAST Genotype Data

The primary purpose of the EUROTAST ITN Network is to explore the history and contemporary legacies of the transatlantic slave trade, through implementation and analysis of large-scale genome-wide SNP datasets. Additional objectives include the use of the generated data to answer important historical and bio-anthropological questions relevant to genetic ancestry of African-descendant populations.

Access to summary data and individual-level genotype data is available by application to the EUROTAST Data Access Committee. Access to data will be granted to qualified investigators for appropriate use investigating population history and bio-anthropological questions. Individual-level genotype data and summary genotype statistics for EUROTAST collections are held within the European Genotype Archive, https://ega-archive.org/studies/EGAS00001002535.

For further information regarding the EUROTAST Genotype Data, please contact ega-helpdesk@ebi.ac.uk or EUROTAST DAC.

 

EUROTAST Data Access Committee (EUROTAST DAC, accession number EGAC00001000687):

Jean-Michel Dugoujon, PhD
Laboratoire d’Anthropologie Moléculaire et Imagerie de Synthèse (AMIS UMR5288)
CNRS-Université Paul Sabatier Toulouse III, Toulouse 31000, France
Email: jean-michel.dugoujon@univ-tlse3.fr

Cesar Fortes-Lima, PhD
Evolutionary Anthropology Team, Laboratory Eco-Anthropology
and Ethno-Biology (UMR7206), CNRS-MNHN-University Paris Diderot
Musée de l’Homme, 17 place du Trocadéro, 75016, Paris, France.
Email: cesar@eurotast.eu

 

Responsibilities for Investigators Accessing and Using EUROTAST Genotype Data.

A. Requests for EUROTAST Controlled-Access Data
Access to EUROTAST data is through a tiered model involving controlled-data access mechanisms. Requests for controlled-access data are reviewed by the EUROTAST DAC, which decisions are based primarily upon conformance of the proposed research as described in the access request to the data by the qualified investigator(s) or submitting institution(s) through the Institutional Certification. The access period for all controlled-access data is one year; at the end of each approved period, data users can request an additional year of access or close out the project. Although data are de-identified, approved users of controlled-access data are encouraged to consider whether a Certificate of Confidentiality could serve as an additional safeguard to prevent compelled disclosure of any genomic data they may hold.

B. Terms and Conditions for Research Use of EUROTAST Controlled-Access Data
Investigator(s) approved to download controlled-access data from EUROTAST-designated data repositories and their institutions are expected to abide by the Genomic Data User Code of Conduct through their agreement to the Data Use Certification. The conditions for the research use of controlled-access data, including:
* Using the data only for the approved research investigating population history and bio-anthropological questions;
* Protecting data confidentiality. The data will not be posted publicly, either on the internet or elsewhere;
* Following, as appropriate, all applicable national, tribal, and state laws and regulations, as well as relevant institutional policies and procedures for handling genomic data;
* Not attempting to identify individual participants from whom the EUROTAST Genotype Data were obtained;
* Not selling any of the data obtained from EUROTAST DAC. The data will not be used for commercial purposes, profit, or patents;
* Not sharing any of the data obtained from controlled-access EUROTAST Genotype Data with individuals other than those named in the data access request. If another researcher wants access to the data, they must request it directly and go through the same institutionally approved data sharing procedure;
* Agreeing to the listing of a summary of approved research uses along with the investigator’s name and organizational affiliation;
* Agreeing to report any violation of the policy to the appropriate EUROTAST DAC as soon as it is discovered;
* Reporting research progress using controlled-access dataset through annual access renewal requests or project close-out reports;
* Acknowledging in all oral or written presentations, disclosures, or publications the contributing investigators who conducted the original study, the funding organization (European Commission through Marie Curie Actions) that supported the work, and applicable EGA accession number (EGAD00010001283) through which the investigator accessed the data.

EUROTAST DAC expects that investigators who are approved to use controlled-access data will follow guidance on security best practices that outlines expected data security protections (e.g., security measures and user training) to ensure that the data are kept secure and not released to any person not permitted to access the EUROTAST Genotype Data.
Violations of these conditions are considered a serious breach of ethical conduct and may lead to legal action. If investigators violate the terms and conditions for secondary research use not related to population history and bio-anthropological questions, EUROTAST DAC will take appropriate actions.

You will need to complete both an application form and the data sharing agreement: EUROTAST_Application_Form.pdf.

Once your submitted documents are approved, you will be sent the controlled-access EUROTAST Genotype Data. Any queries regarding access procedures or completion of the forms should be sent to: Cesar Fortes-Lima (cesar@eurotast.eu).